Friday, June 7, 2013

Wait Watch Wonder: Our Favorite Movies Bloghop

I think that this hop could be fun on different levels. It will sort-of be like seven degrees of sepatration. You write about a favorite movies of yours, visit another site in the hop and comment on their choice, then choose an actress or actor from their movie and write about another movie that they are in... easy enough - right? Join the hop! Visit the site here: Wait Watch Wonder: Our Favorite Movies Bloghop: I have this idea for a bloghop. I have a love for movies so what better way to get a bloghop rolling then sharing our favorite movies. Blog...

Thursday, June 6, 2013

No Night Nursing


Having a son with special needs, he requires 24/7 care. Through his insurance he is allotted 8 hours of nursing a night. The reason he has to have someone monitoring him around the clock is because he has a trach (tracheotomy) to help him breathe and a J-tube (jejunum) for his formula feeding. Kaleb can have nothing by mouth. We let him have a very tiny taste once in a blue moon, like a little (tiny) bit of icing from his birthday cake. We have to be careful because he has micro aspirations. This is due to his tracheotomy, there is a flap that covers our esophagus so that when we swallow the fluids do not go down our bronchial tube to our lungs. Kaleb's flap does not close enough and small secretions can escape, going to his lungs and could cause further complications.
Because Kaleb requires 24/7 care, we have to have a nurse come into our home for Kaleb. This was very awkward in the beginning, trying to relax and go to bed was nearly impossible when a stranger is watching your medically fragile son. It gets better once you get to know the nurse and build trust. However, I have learned (the hard way) you should keep a professional relationship because, unfortunately, people can take advantage of your trust.
So, when a nurse is unable to fulfill their shift, usually there is no coverage. So then, it is up to me to stay up and take care of Kaleb. This can be more challenging and difficult when multiple nights are required and you have responsibilities during the day that will not permit you to rest. I heard once that interrogators will keep their prisoners awake, and after experience going days without adequate sleep, I can totally see how extreme sleep deprivation can be torturous.
On a positive note - Kaleb went to school today so I was able to get a couple hours of good sound sleep. It is both important for our mental and physical health. Lack of appropriate rest can result in various health concerns that can be very serious. I know when I do not have enough sleep it affects me physically by my symptoms of nauseousness and dizziness and mentally with irritation and depression. As caregivers it is crucial that we take care of ourselves.

Letting Your Freak Flag Fly

Aberration Blog Hop:Finding The Most Aberrant Characters

By definition aberrant means the departing of an accepted standard, or the diverging from the normal type (Google search, 2013). Author, Lisa Regan, in celebration of the release of her second novel, Aberration, is hosting the blog hop, which runs through June 6th and 7th. In Aberration, FBI profiler, Kassidy Bishop is on the hunt for a serial killer who is an aberration - a freak - even among serial killers. In lieu of Regan's new novel, the Aberration Bog Hop is to highlight characters that, like the serial killer her main protagonist is searching for, might be labeled as 'different'.

Top 5 Aberrant Characters - Extracting the Extraordinary

5.) Powder (1995) - Jeremy "Powder" Reed (Sean Patrick Flannery) Powder on IMDb.com
4.) Phenomenon (1996) - George Malley (John Travolta) Phenomenon on IMDb.com
3.) Captain America (2011) - Steve Rogers (Chris Evans), his personality shines as a pipsqueak who has the personality of a hero, it is when his body is given the chance to catch up with his personality that makes him extraordinary. Captain America: The First Avenger on IMDb.com
2.) X-men: The Last Stand (2006) - Jean Grey/Phoenix (Famke Jannsen) Jean Grey-Summers telepathic and telekenetic powers X-men: The Last Stand on IMDb.com
1.) Wreck-It Ralph (2012) - Vanellope (voiced by Sarah Silverman) I love this character because within her game she is labeled as a 'glitch', in other words a 'freak'. But, everything is not as it seems! I didn't think I would like this movie, but quickly fell in love with it. To read my movie review http://waitwatchwonder.blogspot.com/2013/03/movies-in-review-wreck-it-ralph.html

As a writer, almost like a 'bonus' character I would like to introduce you to Xylo. Xylo is an aberrant character within my first book, Going off Dreams (K.E.Nowinsky). She was not always different, but because of her choices in life, she has been transformed into a woodland dryad that is cursed with her indiscretions. To read more about the Woodland Dryad General, Xylo - read Going off Dreams.